Have you ever had a moment when your answer to a question determined whether your life imploded?
I have.
It came five days into parenthood. I was lying on the floor in my maternity hospital room crying because I was trying to outrun a jaguar chasing me towards a cliff. Things were starting to go very wrong in my brain.
In the following months, when my mind warped and writhed in the grip of psychosis and later catatonic depression, and when what started out as postnatal psychosis turned out to be a first episode of bipolar 1 disorder, I could not imagine things being worse.
But they could have been.
My sliding doors moment occurred soon after my midwife discovered me on the floor and said:
‘I think you have more going on than the baby blues.’
And before anything else happened she asked me this question:
‘Do you have private health insurance?’
Because I was able to answer ‘Yes’ then, my life now is very different to what it could have been had I answered ‘No’.
Thirteen years on I have two healthy, happy children and a strong marriage. I have a roof over my head and many nourishing relationships. I was able to continue working as a small animal veterinarian, finish my Master of Arts in Writing, Editing, and Publishing, write a memoir detailing my experience with a severe mental illness, and develop my passion as a mental health advocate, both independently and as a SANE Peer Ambassador.
I take none of this for granted.
Because here’s how things could have gone had my answer been ‘No’:
I wouldn’t have had access to the Mother Baby Unit (MBU) in the private psychiatric hospital I was referred to, courtesy of my private health insurance.
I still would have had my first psychotic episode two days later. But instead of being in the safety of the MBU where postnatal psychosis could have been diagnosed and treated immediately, I would have lost touch with reality while attempting to look after my one-week old baby at home.
Had my husband recognised I was being tortured by psychosis and called an ambulance; I would have been taken to the nearest public psychiatric ward.
I may not even have been admitted because (at that stage) I was not suicidal or a danger to anyone else. And yet in the private hospital setting I was (accurately) assessed as being unwell enough to not only remain hospitalised but to be moved from the MBU into the hospital’s SCU (Special Care Unit).
If I had made it onto a public psychiatric ward, I might have been given a chair to sleep in because sometimes there are not enough free beds.
Public psychiatric wards are under-resourced. And their dedicated, compassionate staff risk burn out because they work in stressful conditions with inadequate support.
For patients, being ‘looked after’ in these conditions can mean being put in a room and told to ‘cry it out.’ It can mean requests for PRN (as needed) medication are not acted on for over eight hours. (That is like asking for pain relief after major surgery and having to wait over eight hours before someone has time to get it for you.)
Had I been admitted I may have been assaulted by another patient, whose care was inadequate.
I would have been discharged too soon. I may even have been discharged whilst suicidal, and my husband would have been instructed to watch me for 24 hours a day to keep me safe.
Over the years I would have seen different mental health professionals at different times. Continuity of care is rare in the public system. I may have received my correct diagnosis. I may not have.
My experiences in the public mental health system may have been so traumatic they left me distrustful of all psychiatric care. I may have self-medicated with alcohol or illegal drugs because I felt I had no other options available to dull my excruciating symptoms.
I may have slid down the slippery slope of self-medication onto the black ice of addiction.
Without the correct management, this illness could have left me jobless, homeless, and with no functional relationships to support me. It could have left me a criminal.
If suicide didn’t kill me, an accidental drug overdose or living on the streets might have.
With high quality care people living with severe mental illness, like me, can return to a fantastic, functional quality of life. But it sickens me to know that in this country access to that care is not a right but a means dependent privilege.
That knowledge sits like a rock in my stomach.
That knowledge makes me ache and work for a future when my children’s generation can access excellent mental health care regardless of their ability to afford private health insurance.
And the first step into that future is holding the terrible state of our public mental health system, and the politicians who turn away from its state of disrepair, responsible for breaking some of our most vulnerable people.
Each of the scenarios I have described as potentially happening in the public mental health system have happened to people I have had conversations with over the last 13 years.
This post was inspired by this recent article in the Sydney Morning Herald: https://www.smh.com.au/lifestyle/health-and-wellness/private-health-insurance-has-probably-saved-my-son-s-life-20190807-p52exz.html?fbclid=IwAR2SrZCv1V6hieslgdQ9dpeJVQ9otPb7ikaTLU-CrzShMBlDGU9exvlI8Yk
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Thanks Anita, for another wonderful post.
With much warmth,
Norm
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Thanks for taking the time to read!
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The public systems not all bad. They actually saved me. I was in a private psychiatric hospital for six years before being banned from there a few years ago, and the private system almost killed me (its a long story, email if you want to know details)- and the public system has done what the private system never had the time, patience or capacity to do.
But, I’m glad its worked for you- so happy you’ve had a good experience! I know the mental illness journey is a tough one, its been part of my life for many many years.
Stay focused hey!
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Thanks so much for taking the time to read this post. I love hearing about instances when people have had good experiences in the public system. I also know of others who have had bad experiences in the private system. I don’t believe the public system is all bad, but it needs an injection of funds and attention so that it can keep valuable people working in it. You are so right – living with mental illness is tough. But in my experience, it is made much easier by getting the best care as soon as possible after you first get sick, and it should be possible to access that care consistently regardless of means.
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