2020 Ends In Hospital

I am going into hospital later today.

And I am aching to get there, straining towards the moment I close the door to my hospital room on a world I am the wrong shape for right now.

How did I get here this time?

Fourteen days ago I had a regular appointment with my psychiatrist. Just a Bipolar 1 Disorder monthly maintenance appointment. I was completely asymptomatic.

Thirteen days ago I left for our beach holiday and forgot to pack my swim wear. Subtle. I mean that could happen to anyone. Right? But by the following morning I was symptomatic alright. My short term memory and concentration were dissolving like sugar cubes in boiling water.

A buzzing pressure behind my eyes radiated up my forehead. I knew from bitter experience, if I did nothing, soon that buzzing could make me second guess what was real or not.

That was symptomatic enough to page my psychiatrist on a Saturday morning. It’s only the second time I’ve paged him out of hours in 14 years. He called back in under three minutes.

Over the last nearly two weeks, the first of which I stayed at the beach, he telephone consulted with me every second day, adjusting medications, a little more of this, a little more often of that. I slipped from my bed gratefully into the ocean, timing the most sedating medications for times when I’d be in bed not the ocean. I seemed a little better, maybe? But then not.

Back home we continued every second day phone consults, adjustments. This is by far not the sickest I have ever been (although psychosis and catatonic depression requiring ECT to reverse, do set a very low bar)

So why would I want to go into hospital, rather than continue treatment at home?

Here’s why:

The surface of my brain feels as though it is covered in papercuts and being surrounded by people and noise is like having lemon juice dribbled over the cuts.

Trying to hold in the irritability of being around people and noise (including my close family) is like being intensely nauseous with someone threatening to punish you if you vomit.

One of the parameters I use to assess how close I am to needing to go into hospital is ‘the sandwich test’. Think about the amount of concentration and short term memory it takes to make a sandwich – nothing fancy, just two slices of bread, some butter and one topping. For most healthy, able bodied, able brained adults, this is not a challenging task.

Right now – I can still make a sandwich, but it’s a challenge. I am making a decision, based on past experiences, not to wait with hospitalisation until challenge becomes an impossibility.

As for the seasonal timing – Christmas and New Years celebrations? I am veteran enough in the management of this illness to know it has no knowledge of nor respect for holidays and anniversaries. I could list my tenth and fifteenth wedding anniversaries as times spent in hospital, a longed for trip to Paris cancelled because of recent hospitalisation, and that would be the beginning of a list so long I’ve forgotten most of it. These times are just human constructs. If it swallows them I don’t dwell on them.

Instead I celebrate the unscathed special occasions extra hard, to make up for the times there is nothing.

The final reason for going into hospital now, is because I can access this level of care. I am fortunate to have the option of going into a private psychiatric hospital when I am sick. The standard of hospital care I will receive will be excellent. It will far exceed anything the public psychiatric hospital system has to offer.

I loathe getting sick enough to need hospital support. But perhaps even more than this I loathe the hypocrisy of someone with my privilege not utilising that support because of some misguided stigmatising ideas about what it means to be a patient in a psychiatric hospital.

I am profoundly grateful I can afford care in a good private psychiatric hospital. And part of my own recovery, once I’ve stabilised medically, is to remember there are many people living with this illness, and other severe mental illnesses, who are learning to live with them with far less support and privilege than I have. When my recovery feels hard I focus on this:

If I access the supports I am fortunate to have, I am more likely to be around for long enough to help raise awareness of the inequality between our private and public mental health hospital systems, and work towards our public mental health hospital system actually supporting some of our most vulnerable when they need it most.

If you are new to Thought Food and would like to know a little bit about who I am when I am well, you may like to check out:

Who Am I ?

Radio And Podcast Interviews

Rewards For Reports: Entitled or Deserved?

I had an interesting conversation with one of my children this morning.

They opened with this:

‘Why don’t you give me something to celebrate my report card?’

 They paused briefly before elaborating: ‘It’s just that my friends who also got good marks are all talking about the presents their parents gave them for it, and they ask me what I got and I have to tell them I just got a pat on the back and a “well done”.’

Where to begin? Maybe with a little context:

For their entire school careers (so far) I have placed no pressure on my children to achieve academically and almost no importance on the marks they get. Providing they are not falling so far behind that they need additional support, and they are doing their best – I am not invested in the outcome. The only two report parameters I care about are their effort and their behaviour.

So far neither of my children have needed additional learning support. This is something I am grateful for, don’t take for granted, and I definitely don’t take any credit for.

I do my best to make sure they get enough sleep and have a decent breakfast before school. I pay for their uniforms, books, excursions, and other school related expenses. I try to give them an emotionally healthy home to return to after each day at school. And while their academic achievements may be built on this foundation, they are very much their own.

The child who began this conversation with me this morning happens to consistently get very high marks across their report card. None of these marks, or the awards received because of them, have ever been incentivised by my husband or I.

Of course, we are proud of our children when they do well, and we tell them, but we are not about to start rewarding high marks with extravagant material possessions. Here are some of the questions I asked my child to help explain why:

‘Do you feel good about getting a fantastic report card, just for the sake of it?’

‘Do you think the most important thing about you is the marks you get?’

‘For the kids getting the fancy presents for getting good marks – do you think they might feel pressure from their parents to get those marks? ’

‘And what happens if one of those kids has a really ordinary year – for example they get sick, or they have a rough time with their friendships and feel sad, and their marks slip below excellent? How will it make those kids feel if they don’t get the good marks and the presents, because of things that are out of their control?’

‘When those kids grow up and do something really well at work and don’t get presents for it, – because that is not the way the grown up world works – will they feel let down?’

‘And say for example I did give you a fancy big present for getting great marks, would you go to school and tell everyone about it?

I got different answers for each question, but the answer to the last one was (thankfully) a resounding ‘No.’

Whether you choose to reward your kids materially for academic achievement is your decision.

I don’t, because it feels like a slippery slope. It adds pressure. I don’t believe getting top grades at school is a marker for future happiness or success in life. I place more importance on developing my children’s emotional intelligence and mental health than their academic achievements.

I want my children to know that their worth as a person has nothing to do with the marks they get at school.

Living vicariously through your children by either shoving them into the same life path as you followed or wanting them to do better than you did, or (even worse) validating your parenting through your children’s achievements, can all present as pushing them to achieve academically. The problem is these motivations revolve completely around the parents’ needs. They have nothing to do with the child.

But if you want to give your kid a Nintendo switch for their straight A report, please give it with a side of humility and sensitivity. Teach them that doing well at school – while yes it may be the result of their hard work – is not a given for all kids.

Some kids work harder than your kid ever will and will never get top marks. Other kids are not privileged enough to get the basics for good academic achievements (breakfast, a desk to study at). Still others live with a diagnosis whose symptoms make it impossible for them to win any awards.

And none of those kids need to hear yours bragging about their report rewards.

You may also like to check out:

Don’t Try This At Home: Schooling

Mental Health Parenting Truths 101

Talking About Mental Illness With Children