Blog Posts

Mental Health Parenting Truths 101

Written for Queensland Mental Health Week 2020

At some point you will get it wrong.

It will be well intentioned. It may come from a place of not wanting to replicate your own upbringing or the mistakes you think other parents are making. And it will probably be informed by your experiences and biases.

I’ve always known this…in theory.

But the other day my fourteen-year-old daughter courteously yet clearly served my imperfections in this area up to me. This was no teenage tantrum. It wasn’t even an argument. It was simply a conversation in which I was presented with unpalatable information about myself, and then had to choose what I did with it.

It started simply:

‘Mum, can I please get TikTok? Remember I asked you about it a month ago, and you said you’d think about it.?’

‘Mmhm.’

For context – she gained Snapchat and Instagram over the last few months, to my knowledge has not abused any of her privileges, and right now appears to be in good mental health.

So, we talk about how she’d manage seeing distressing content if it popped up. I probe her with her worst-case scenario.

‘What about animal cruelty?’ I say and follow it with a graphic example.

‘I’d talk to someone about it.’ She answers calmly.

‘Who would you talk to?’

She doesn’t hesitate: ‘Well definitely not you! Probably Dad.’

‘Why not me?’ I ask,

‘You and your mental health stuff – you’d blow it all out of proportion, take me to a psychiatrist, have me medicated and force me into years of therapy.’

I did ask.

And while she is wrong about the imagined consequences of telling me she saw some distressing social media content, she is right about something else.

I am hypersensitised, filled with knowledge of the very worst mental illness has to offer. And not just my own. Every time I go into hospital, I share that space with others who are going through their own worsts.

When I see young inpatients often only four or five years older than my eldest child with bandaged wrists or cutting scars, bolts of fear shoot through me. Fear that one day my children could hurt like that.

Every time after my Bipolar 1 Disorder has put me through hell I am frozen by the threat that I will have given this illness to my children. I know that (beyond not introducing significant trauma to their lives and warning them of the dangers of drugs that can trigger the genetic component of this illness) there is nothing I can do to outparent it. But I still try.

After I got sick I was determined my children would grow up in a family that was open about mental illness. There would be no shame and no stigma. They would know from a young age where I was going when I went into hospital and why.

The knowledge that sometimes mental illness sprouts in childhood and adolescence is heavy and made heavier by the fact that sometimes it is fertilised (even in the absence of major trauma) by parents unwittingly invalidating their children’s’ feelings or experiences.

I never wanted to be that parent. And I am not. But I may have made the opposite mistake.

 By unintentionally force feeding my children my concerns around mental health, could it cause them to turn away from the very tools that could help them should they run into a mental health crisis?

Mental health is stitched into the fabric of our family’s conversations partly due to my lived experience, but also because of what I do. My children have never known a time when I haven’t been a vocal mental health advocate. I write about it. I talk about it frequently – sometimes quite publicly.  

And if I dig deep into my motivation for wanting to change the way mental illness is perceived and treated, my children are at the core of it. That motivation is as simple as it is unrealistic:

I want to fix our mental health system so that it can help rather than harm my children should they ever experience mental illness.

I am loathe to admit it but yes sometimes all my motivation, knowledge and focus, can morph into hypervigilance, ready to pounce on the very whisper of something not being right with my children’s thought patterns.  And in my futile efforts to protect them from my worst nightmares, at times I probably veer dangerously close to pathologizing their emotions, which can be as damaging as not acknowledging them at all.  

I do this reflexively even as I know that parenting out of the fear of what could happen is even worse than living your own life ruled by fear.

And yet, deep down I know that if either of my children get sick it won’t be my fault or TikTok’s. If that happens, hopefully their father’s less informed love will be the perfect counterweight to remind me that while my knowledge might be useful in some situations, at other times applying the full weight of it can be like attempting to kill a fly with a sledgehammer. Ineffective and potentially damaging.

Post scripts:

It was a yes to TikTok.

While I am deeply grateful that right now neither of my children require psychiatric care, my advocacy work will continue, because it is grim out there. I caught up with a friend recently whose child does need a child psychiatrist urgently. The waiting time to get an appointment with a private child psychiatrist is currently twelve months.

Or there’s the public hospital Emergency Room if symptoms become life threatening while you wait…

Published with full permission from the fourteen year old who also helpfully pointed out I’d misspelt TikTok in the previous draft.

You may also like to check out:

Talking About Mental Illness With Children

As Mothers Of Sons

As Mothers Of Daughters

Is YouTube Rotting Our Brains?

On Uncertainty

Written for QLD Mental Health Week 2020

How does uncertainty make you feel?

I ask because uncertainty is having a moment right now. It galloped in with the Covid-19 pandemic, and the further we get into it the more it seems to be digging itself into our awareness.

I used to be deeply uncomfortable with the pebble of uncertainty in the shoe of my life. I liked to know what was ahead. It gave me a (false) sense of control and the misguided belief that just because I couldn’t see uncertainty in my life, it didn’t exist. I deluded myself for decades that when there were no clouds on the horizon, the course of my life was somehow more certain than if I could see trouble ahead.

Then all the certainty in my life was put through a paper shredder within five days of my first baby’s birth.

I got my new baby experience with a side of florid postnatal psychosis severe enough to warrant admission to the locked Special Care Unit of a psychiatric hospital. My sense of certainty and control over my life went down the toilet.

After I’d recovered from this psychotic episode I felt entitled to some certainty. I wanted to know this nightmare was over. And I wanted a guarantee it would never happen again.

So when my psychiatrist mentioned ‘a possible underlying Bipolar Disorder’ and that it would ‘take three to five years to know for sure’, the inside of my head threw a combination of a tantrum and a pity party.

When I got sick again after three years, after seven years, and after nine years and my diagnosis of Bipolar 1 Disorder was confirmed, I still felt entitled. Entitled because: ‘hadn’t I suffered enough yet?’ Entitled to not have to tiptoe through my life with everything clenched, waiting for the next time this thing pounced.

I have only recently acquired some degree of acceptance of the uncertainty this illness introduced into my life. I didn’t enjoy the last two episodes in 2018 and early 2020, but I also didn’t waste energy resisting them. In the same way I no longer spend any of my resources anxiously wondering when it will happen next and how bad it will be, because without wanting to sound nauseatingly Zen, the truth is: It will be what it will be when it will be.

Uncertainty exists in everyone’s life every day. But instead of it floating along in the background, right now it is constantly being rammed down our throats. It’s like having a nasty little gremlin on your shoulder whispering over and over again:

‘You do realise bad things could happen to you at any minute’, when the true risk of something bad happening to you is probably not that different to pre-Covid times.

For our mental health to survive this pandemic we have to learn to live with uncertainty, because the end of it is nowhere in sight. And just like my psychiatrist couldn’t give me any certainty when I first got sick, the smartest scientists in the world aren’t able to accurately answer this question about Covid-19: Will it ever be over, and if so when?

Uncertainty is an uninvited, kicking, snoring bedfellow. So how do we get comfortable with it?

First we tease out what about this situation we can control and what we can’t. For example, we can’t control the flow of information that feeds our uncertainties rushing over us every day, but we can control how much of it we absorb.

And once we’ve done what is in our control to help ourselves, we have to try and unclench from the need to know what is going to happen next. We need to stop trying to know and plan for a future that is like a spiderweb in a storm. Here’s what I mean:

During one of my admissions to hospital I sat staring out of the window of my room feeling as though there was no point in doing the work to rebuild myself because my future was too uncertain, my illness could tear me apart again anytime.

Over a couple of days of intermittent staring I noticed a spider in its web just outside my window. Every night it stormed. Rain, wind, a couple of times hail tore chunks out of the web, at times almost destroying it.

That spider showed me the way out of my tangled thoughts, by not only rebuilding every time after its pristine web was wrecked, but doing so in the face of the risk of the same thing happening again, whether the next day or in a year.

The sword of an uncertain future has hung over every single one of us since the day we were born. Nothing has changed there. It is just up to us whether we choose to battle with uncertainty and lose, or whether we accept that being alive will always mean living with uncertainty, pandemic or no pandemic.

You may also like to check out:

Lessons For A Control Freak

The Other Curve Being Flattened

When Covid-19 And Bipolar Recovery Collide With Unexpected Results

Tokenism In Mental Health Awareness

Tokenism In Mental Health Awareness

Written for QLD Mental Health Week 2020

Saturday 10th October is World Mental Health Day and I feel a little conflicted about highlighting it. There are a lot of positives to having dedicated days or weeks to draw our attention to mental health. But I also believe we need to approach these awareness days with a little caution. It’s too easy to post or repost something related to the topic, tick the box of doing good and move on with our days.

Ironically these tokenistic efforts are becoming more common as awareness around mental ill health grows, especially when we don’t have to move beyond the comfort of our keyboards to feel as though we are achieving change. Of course it is good that there is more awareness, tolerance and marginally less stigma surrounding mental ill health than there was fifty or even twenty years ago. But we have to make sure we don’t replace the old insensitivities with their more modern counterparts.

I have written about my dislike of RUOK day before RUOK Day: Full Disclosure and this year I heard another perspective that reenforced my reasons for disliking this day. When I am well, my psychiatrist appointments usually consist of me requesting scripts for any medications I am running low on, a brief check in with how I’m going and then we chat about the state of the world, my advocacy work, his psychiatry work. This year one of my appointments happened to fall around RUOK day and we talked about the pros and cons of this day. I expressed my opinion and my psychiatrist referenced one of his patients coming in on RUOK day in distress because they were bombarded by people they knew asking them if they were ok. People they didn’t hear from for the rest of the year. People who were probably well intentioned, but using them as the token mentally ill person in their lives, to tick the box of having asked: RUOK?

Awareness around mental ill health should not be confined to one day or one week of the year. Episodes of mental illness flare unpredictably and feel as though they will never end. This feeling is fed by the fact that no one can tell you when it will end. There are good days and worse days. There are days when the risk of it turning into a terminal illness skyrockets. Someone may have a spectacularly good day on RUOK day, a calm and uneventful mental health week, but be suicidal sometime in April or on Christmas day, when it is all too easy to be under the impression that we showed our support for those among us living with mental illness back in mental health week, and Christmas day is busy and by April we are into Caesarean awareness month and IBS awareness month.

 So what can we do to be meaningfully aware of the impact mental ill health has on those of us who live with it, and what can we do to support them for more than a day or a week of the year?

Everyone who lives with mental illness is different and everyone’s experience is different even if they live with the same diagnosis. So, I don’t speak for everyone.

For me – I don’t need to be asked how I am. I have enough insight into my Bipolar 1 Disorder to know when I need to seek help. I am fortunate to have good support systems in place, so I don’t tend to feel lonely or isolated.

For me it is all about the language people use. Hearing or seeing stigmatising language either in the media, on social media, or spoken, punches me in the gut. When I am confronted with words like nuts, crazy, lunatic, psycho, mental institution, – the list is long – it belittles me. It strips away the facts of my life, my healthy functional relationships, my personality, my university degrees, my profession, my interests, my sense of humour and it reduces me to a hellish caricature of who the misinformed masses believe someone mentally ill is.

So, think about how you write and speak around me. If you hear or see someone else perpetuating stigmatising language around mental illness, call it out. Do so politely, but raise awareness of it. I do it as often as I can, but I also get tired of being told to shut up, get over it, or that I am overreacting.

Perhaps the most helpful thing you can do for someone in your life who lives with mental ill health is not to automatically ask them how they are, but to ask them what you can do to make them feel valued and supported all year round. They may answer: ‘Ask me how I am’ in which case you are doing it meaningfully and mindfully, not because it is a certain day of the year.

All that said, Happy World Mental Health Day everyone. In honour of it also being Queensland Mental Health Week from 10th-18th Oct I am aiming to drop a few additional posts in Thought Food this week.

Look after yourselves and each other!

You may also like to check out:

RUOK Day: Full Disclosure

Mind Your Language Katy Perry

Don’t Call Conspiracy Theorists Crazy

Don’t Call Conspiracy Theorists Crazy

If I were to call out language that stigmatises mental illness every time I came across it on social media, I’d be posting about it every couple of days. But no matter how called for I may feel it is, I don’t want to douse my readers in a bitter diatribe that often. I also enjoy a break from being told to shut up or get over it by people who don’t agree with my assessment of stigmatising language. So I’ve let it go for a while.

But I came across the following facebook post recently, which hit a nerve and left it throbbing for long enough to drive me to the keyboard:

Thoughts?

Now, I don’t like the word lunatic – but that is the least of the problems with this post. And as much as I’d like to agree with the sentiment, I have to ask:

What does this post imply about those of us who live with severe mental illness?

It equates us with people who believe and propagate fake news. The most pejorative label for people who don’t believe in climate change, the author of that snippet could come up with was to portray them as mentally ill.

Anti vaxxers, people who don’t believe in Covid 19, or who don’t believe in climate change don’t  have those beliefs because they are mentally ill. They believe them because they are poorly informed and possibly brainwashed.

So, let’s not conflate pathological delusions experienced as a symptom of mental illness with people who are just misinformed and who refuse to delve into some scientific research.

I live with Bipolar 1 Disorder, and have experienced delusional thinking as a symptom of this illness. I not only believe in climate change, I am very concerned about it. I believe the overwhelming benefits of vaccination outweigh the few risks. Covid 19? Of course it exists. Donald Trump? Ten of my posts wouldn’t be long enough to list the reasons he has to go.

And yet when I jump onto social media I am bombarded with posts that tell me that the best way to insult  the people who believe the opposite of the truth is to call them mentally ill, and thereby imply that if you live with mental illness you are in the same category as people who can be brainwashed.

Delusions caused by mental illness are completely different to the overconsumption of, and belief in, fake news. By labelling all of the people who don’t believe in scientific proof as mentally ill you insult and dismiss the many people who live with mental illness and who are critical thinkers who do believe in scientific evidence.

I can only speak from my experience of delusional thinking, but here’s what I know:

Delusional thinking isn’t a contagious false belief system you are indoctrinated with. True delusional thinking as a symptom of mental illness is completely involuntary. You don’t choose to experience it. It sweeps in on the coat tails of an illness that fundamentally changes how you interpret the truth.

For me, delusions are accompanied by mania which at its worst tilts into psychosis. The inside of my head feels as though I am riding a rollercoaster that’s on fire. I don’t sleep. The first time it happened, I tried to convince everyone of the truth to my malignant belief system. And in my experience true delusions due to mental illness resolve with antipsychotic medications.

The chances are your average antivaxxer or climate change conspiracy theorist will not change their beliefs if you dose them with antipsychotic medications.

So, If you read the post above and shrugged your shoulders or like several of my facebook friends gave it a like, let me rewrite it for you and see if you change your mind. Here goes:

‘If you believe all of (sic) world’s scientists got together to fake 7000 climate studies as part of (sic) elaborate hoax, you are not conservative you are a cancer patient. We have to stop treating people brainwashed by right-wing propaganda as political actors and start treating them on an oncology ward.’

Uncomfortable yet? You should be because the implication that people who live with cancer are idiots, is as ridiculous as it is insulting.

So why is it ok to equate my serious mental illness and the fact that I have at times spent months in a psychiatric hospital to me being an ignorant conspiracy theorist?

You may also be interested in checking out:

Mind Your Language Katy Perry

You Don’t Die Of ‘Mental Health’: Why Wording Matters

Insight: The Essential Ingredient

One morning, a few years ago my heart thudded against the tight metal bands strapped around it. Adrenalin ping ponged through my system. I was out on a run, and the air hummed with a kind of malevolent electricity. I sensed something terrible was about to happen. And it did. I was heading down the hill when I saw them. Severed limbs, pale and bloated – tossed carelessly in the gutter.

My breath lurched in and out of me as I stood and stared in horror. Should I call the police?

Then insight broke through and with it a reality more terrifying than the severed limbs. I didn’t need the police. The limbs were sandbags. I sprinted inside, hit the call button next to my bed and clenched my eyes shut while I waited for a nurse.

When he popped his head in the door, I opened my eyes and said:

‘Can you please page my doctor. I’m starting to have visual hallucinations and delusional thoughts.’

He went and, having paged my psychiatrist, returned very quickly with a cupful of antipsychotic medication. I gulped it down and waited for the jumbled sharpness inside my head to soften and slow.

If this had been my first experience of psychosis I may have been terrorised by the severed limbs (and worse) for longer. I may have tried to tell other people about what lay in the gutter at the bottom of the hill. But it wasn’t my first experience.

I had admitted myself to hospital several days before with precursor symptoms. Speeding thoughts, pathological irritability, non existent concentration and short term memory. I was in hospital waiting, the potential for psychosis hovering darkly over me. So, when it descended I knew what was happening. And that insight got me treatment quickly and saved me from the embarrassment of a family member, nurse or doctor having to convince me I was delusional.

Developing insight usually requires multiple episodes of illness and hard, proactive, psychological work. You have to dig around inside yourself to learn what are normal feelings and behaviours for you and which ones herald the onset of illness. The hard work of gaining insight is even more challenging for anyone who hasn’t had access to effective early management of their illness.

And no one ever has insight into their first episode of illness because that first episode hijacks you. It catapults you from being someone who could always trust the contents of your head to those contents not only being unreliable versions of the truth, but sometimes your worst enemy.

And unlike experiencing symptoms of a physical illness you can’t just lie back and expect others to know you are sick. If you are vomiting or have a nasty cough your suffering is obvious to everyone. You don’t need insight to tell your family or your doctor about what is going on with you in order to get the help you need.

With a mental illness, painful symptoms are often expressed as behaviours. They can mercilessly present you to the world as:

 negative, unmotivated, slow, shuttered, insecure, nervous, scattered, indecisive, irritable, unfocussed, unintelligible, uninhibited, nonsensical, lost, delusional, racing, jittery, and more.

In part insight means learning to recognise that what can feel like personal failings are just symptoms of an illness. You have to internalise this before you can translate what is going on with you for the people around you.

But regardless of how someone manages their mental illness, they won’t do so successfully in the long term without insight. Or they will rely heavily on others to tell them when to seek help.

 I absolutely loathe anyone else speaking for me in any area of my life, but particularly when it comes to my Bipolar Disorder. So, doing the work to gain the insight was and continues to be non negotiable for me.

My psychiatrist and I now communicate very efficiently. He doesn’t waste time asking about how my family think I’m going because he knows he will get the most accurate answer directly from me. I can recognise and name the symptoms I’ve gotten to know so well over the last 14 years.

I am practiced at translating overwhelming feelings into symptoms. For example, I know now that when my life feels as though I am running through chest high water with concrete boots on that is depressive symptoms setting in, and if I ignore them, the water will continue to rise.

My symptoms will always affect me, and they will always hurt when they flare into life. But recognising and naming them shrinks the overwhelming into the manageable. Insight has built a safety barrier between me and this illness. It ensures I can see that even though I may live with its symptoms, those symptoms have nothing to do with who I am.

You may also be interested in:

Vulnerability And The Exploitation Of Kanye West

Razor Blades In Mud: Laziness Or Depression?.

My Mental Illness Makes Me A Better Parent

The ‘Breast Is Best’ Myth

Alex baby foto
Alex March 2010

Last week was breastfeeding awareness week, and the irritation I feel when I see strong pro-breastfeeding messaging flared. I usually bite my tongue and suppress my politically incorrect opinions about this emotive subject. I don’t care about how anyone chooses to feed their baby. But I do care that the ‘breast is best’ myth is still being drip fed to (especially first time) mothers like a sugary subtle poison.

Fourteen years ago I had my first baby. I lapped up all the breastfeeding propaganda from the hospital antenatal classes and my antenatal yoga classes. Because I trusted these sources.

And they didn’t exactly feed me falsehoods. But they did imply a mother who switched to formula before she had exhausted every possible option to keep breast feeding was not doing the best for her baby. Posters in the maternity hospital told me that exhaustion, blood streaming from cracked nipples and tears streaming down your face were all worthwhile prices to pay to feed your baby this liquid gold.

After going into thirty three hours of labour on two hours sleep, my daughter was delivered by caesarean. I fell asleep as I was being stitched up. The midwives wasted no time. I woke with a start, in recovery to find my baby attached to my left breast. It was so important to these midwives that my baby attached ‘immediatley’ that they didn’t even do me the courtesy of allowing me to wake up before making this most intimate of introductions.

The focus on the holy grail of establishing breastfeeding in the maternity hospital was so strong that I sat up for three hours at a time thinking I was feeding my baby, when she was comfort sucking for most of that time. It left me exhausted and my back a wall of pain from sitting in the ‘feeding chair’.

Now, if that were the worst of it, I would have probably gullibly pushed through all further discomfort to establish and continue breastfeeding. Had I succeeded, I would have probably felt proud of myself. And after being told time and time again children who are breastfeed are healthier, smarter, more empathetic, and more likely to poop rainbows, I may even have been arrogant enough  to attribute all of my daughter’s future, health, smarts, and empathy to my valiant efforts to persist with breastfeeding. (She has yet to poop out a rainbow – but I can live with that.)

But within a week of her birth, whether or not I breastfed was injected with some desperately needed perspective. She was at home with her father, contentedly guzzling formula while I was tipping my breastmilk, tainted with antipsychotics, down the sink in the Special Care Unit of a private psychiatric hospital. I had come down with postnatal psychosis and I was clinging to my life with my fingernails.

To my credit, I quickly forgave myself for ceasing my ‘breastfeeding journey’ 7 days into motherhood. And I didn’t look back. I had been too sick to ever be riddled with the guilt I saw in other mothers who had been less unwell but had also made the smart choice (for them) to stop.

But we shouldn’t need extreme circumstances to justify feeding our baby formula to anyone. Breastfeeding is a personal choice. Nothing more. Nothing less. But our society has turned it into a religion. And it’s opt out not opt in.  We are all automatically given anti formula education classes antenatally and then baptised in breastfeeding once the baby is born.

The high priests of this religion are lactation consultants and midwives who set ironclad commandments and rule with fear. The fear of harming our babies with our actions.

The pressure to breastfeed is a known contributor to and risk factor for developing perinatal mental illness. Mental illness that can leave a baby motherless if it is severe. Unlike the maternity hospital midwives, the nurses in the mother baby unit in the private psychiatric hospital I was an inpatient in don’t pressure new mothers about how to feed their babies.

But they do spend a lot of time undoing the damage done by overzealous midwives and lactation consultants who have bullied new mothers into believing they will hurt their baby if they consider formula anytime earlier than as a last resort.

For my second baby I had one breastfeeding aim: Get some colostrum into him. He went onto formula at day 7, just like my daughter. And just like my daughter, now you wouldn’t be able to pick what he was fed as a baby.

Breastfeeding is cheaper than formula feeding. It is more environmentally friendly. It is the safest and most convenient way of feeding a baby in a third world country and/or if you don’t have regular access to clean water or formula. If your baby is premature and/or has underlying health conditions for which a paediatrician has recommended breastfeeding or expressed breast milk, then – for that baby – breast is best.

But if your baby is full term, healthy, you have access to clean water and can afford to buy formula, then (beyond the first few days’ worth of colostrum) whether you choose to formula feed or breastfeed is as irrelevant to your baby’s wellbeing as the colour of your underwear while you’re doing it.

 

You may also like to check out:

World Maternal Mental Health Day: It’s Not All Postnatal Depression

Your Mental Load = Your Responsibility

Modern Martyrdom

My First Time

Radio Interview On Electroconvulsive Therapy (ECT)

Ect interview photo

A few weeks ago I took part in an ABC radio national interview about my experience with ECT (Electroconvulsive Therapy). A psychiatrist and two other people who had had ECT were also interviewed. I am very happy I got to contribute to such a balanced, informative, digestible piece about a psychiatric treatment that is shrouded in stigma and false information. Highly recommend a listen when you get a moment.

Click the link below to get to it:

https://www.abc.net.au/radionational/programs/allinthemind/electricity-and-the-brain/12453120

You may also be interested in:

ECT: Blowing up some myths – Part 1

ECT: Blowing up some myths – Part 2

Vulnerability And The Exploitation Of Kanye West

vulnerability image

Kanye West is unwell again. Hurtling through a manic Bipolar episode while the world laughs. And as someone who lives with Bipolar 1 Disorder, I feel for him.

In the early years after my diagnosis, during one manic episode (while hospitalised) I started discussing my sex life with strangers. My friend who was visiting me steered me gently away.

Kanye doesn’t seem to have anyone to steer him away, gently or otherwise.

Kanye is a wealthy, influential man, who probably has access to the best mental health care available. But I don’t believe his problem is accessing top quality care.

His problem is that he lacks insight and no one around him is game to have the difficult conversations with him. The conversations that point out that while he may be a brilliant artist when he is relatively stable, when he develops manic symptoms his brain needs a break from the world, and the world is not entitled to its contents.

Instead, when Kanye becomes unwell his mania is left to run free.

He has been open about his choice not to take medication to help manage his Bipolar Disorder. That is his right. Medication doesn’t work for or agree with everyone.

But he seems to be unaware that to successfully manage this illness without medication, you need to employ other strategies. You need to hone your insight. And if your insight when you are unwell is shaky, you need a mental health directive.

This means sitting down with your doctors and people closest to you when you are well and discussing how you would like to manage your symptoms when you are unwell. And if you experience manic episodes, one of the most basic requests may be to not have access to the media – social or otherwise – while symptomatic. Why?

Because mania can gobble up your inhibitions, make you see the world through a paranoid lens, and sprout delusions of grandeur.

Kanye recently gave an interview to Forbes magazine during which he rambled for four hours, to this effect:

‘…They want to put chips inside of us, they want to do all kinds of things, to make it where we can’t cross the gates of heaven. I’m sorry when I say they, the humans that have the Devil inside them. And the sad thing is that, the saddest thing is that we all won’t make it to heaven, that there’ll be some of us that do not make it.”

“Clean up the chemicals. In our deodorant, in our toothpaste, there are chemicals that affect our ability to be of service to God.”

If Kanye were a homeless man on a street corner sharing these ideas with the world, the interviewer from Forbes magazine would probably have walked past quickly, maybe shuddering at such overt insanity.

Instead that interviewer sat and listened to him for four hours. Noted down delusional quote after quote and then published an article in which they even describe Kanye’s lack of awareness:

‘If it all sounds like a parody, or a particularly surreal episode of Keeping Up With The Kardashians, West doesn’t seem to be in on it.’

Of course West isn’t in on it! He is walled off from reality by illness.

Did that interviewer ever pause to consider why much of what Kanye was saying made no sense? I suspect (with disgust) that they were fully aware their high profile subject was mentally unwell, but chose to exploit him while he was most vulnerable.

I have written thousands of words I thought were brilliant, while in the grip of mania. But once my symptoms recede, I am relieved no one else has read these largely nonsensical word vomits. Because if they had, that would invalidate the quality of my writing when I am healthy.

But Kanye’s word vomits are out there for all the world to snidely pick at, to brand him a rambling idiot and someone to be sniggered at.

At the time of publishing this post, headlines announcing Kanye’s withdrawal from the presidential race are emerging.

I understand stress and sleep deprivation are a president’s companions for most of their time in office, that pushing through is a corner stone of juggling the demands of the job.

Stress and sleep deprivation are the perfect fertiliser for Bipolar episodes to flourish. Bipolar episodes, once active, can’t simply be pushed through. They have no respect for deadlines or work demands – let alone international or national emergencies.

Whether Kanye recognised the risks of pursuing the presidency himself or whether someone in his circle came forward to have the hard conversations and steered him gently away, I am relieved for him.

 

You may also be interested in:

Misunderstood Mania

Psychiatric Medication And Stigma

If I Were Kanye Westwritten two years ago with a different angle to this post

 

 

 

Honoured, Grateful, And Guilty: A Tangled Family History

image tangled family history

The strands in my children’s heritage are tightly intertwined, multicultural, and impossible to untwist from each other. History labels their predecessors perpetrators and victims, depending on which of their ancestral branches you examine.

A photograph of my maternal great grandmother hangs in my hallway. She looks serious. In mid 1920s Warsaw. Dark haired and dark eyed. My grandmother, aged three or four, stands next to her in a light dress, their arms linked.

My maternal great grandmother was too attached to her country. Fatally so. To me, she is a cautionary tale of the danger of fastening yourself too tightly to one part of the world.

But I only know fragments of her story:

My grandmother (in the light dress) was about nine or ten when she emigrated from the Jewish ghetto in Warsaw to Australia with her parents.

Shortly after their arrival, my great grandmother looked around at the vast, bright country she found herself in and decided it was too foreign for her. She pressed some coins into my grandmother’s hand and sailed back.

To Warsaw.

In doing so she inflicted a lifetime of trauma on my grandmother and signed her own death warrant. Her life was erased by the Holocaust that ripped through the country she chose over her daughter. A daughter who would be orphaned in the vast, bright country at twelve, when her father died just a couple of years later.

My parents’ wedding photograph also hangs in my hallway. Taken in Duesseldorf, 1971. My mother’s dark hair. Dark eyes. My father’s white blond hair. Blue eyes.

I was born in Germany, lived in Saudi Arabia from ages one to five and returned to Germany just before my sixth birthday, in time to start school.

Many German born children of my generation were infused with guilt. We read When Hitler Stole Pink Rabbit by Judith Kerr in primary school. The older grades took school excursions to former Nazi concentration camp sites. This shameful chapter in Germany’s history was rightly not denied or underplayed.

And the whole world pointed its finger at us. At least it felt that way when I moved to Brisbane with my family aged thirteen.

Almost as soon as I started school, a chunky, pimply, blond boy in my year began greeting me with a Nazi salute and yelling ‘Heil Hitler!’ every time he saw me. The other kids stared as though I were personally responsible for Hitler’s actions. Each time it happened I was swallowed by a boiling pit of mortification and anger.

I already owned my German guilt. Guilt with a twist. The country I’d been born in, whose language I spoke flawlessly, that was home to all of my friends, whose seasons, landscapes, and culture I loved, had in recent history been responsible for the genocide of my mother’s family’s people.

My guilt and that knowledge had already curdled uncomfortably inside me, before that boy began hurling the only, and highly offensive, reference point he had for German people, at me.

My maternal grandfather’s Jewish roots can be traced back to 16th Century Portugal. It is one half of where my children’s dark eyes come from. Their high foreheads and cheekbones travelled from Latvia and Germany via my father. The shape of their chins can be traced back to English ancestors from my husband’s family.

My children are both first and seventh generation white Australians.

It is messy alright.

My ancestors didn’t happen to be in Australia when white people invaded and began inflicting trauma that is still ongoing on the First Nations People. But my husband’s predecessors landed here as missionaries ten years after the first fleet.

Does any good ever come from entering a foreign country aiming to convert its peoples to a belief system not their own?

I don’t believe so. No matter what the intent.

And no matter how much I love the descendants of those missionaries, my guilt echoes around that family history. It feels similar to the guilt I felt as a German child of the early eighties.

Yet, guilt on its own achieves nothing unless it pushes us towards acknowledgement and action.

Over the last weeks I have researched and asked advice from people with Aboriginal or Torres Strait Islander heritage on wording an acknowledgement of Country and its First Nation Peoples to include in my book. I am so grateful for their time and knowledge.

I am still working on the exact wording. But I plan to include this (slightly reworded) content from an acknowledgement by the Climate Justice Union:

‘I appreciate I have much to learn about the oldest continuous living culture. I am listening, seeing, and learning.’

We are all capable of listening, seeing, and learning – in some form.

And when my children look at their own hallway photographs one day, I hope they will be proud of their incredible hybrid vigour, know where they came from, but also that they are honoured and should be thankful to travel safely over Aboriginal and Torres Strait Islander lands.

You can find an excerpt of my book, which is due to be published this year (Covid permitting) here:  Book  and the story of  the book’s journey here: Accepted: Crumbs To Canary Wharf

 

 

 

 

 

 

Reintegration: Be Careful Out There

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free image from Canva

This past week has not been pretty.

Aside from a call to the poisons information centre, three visits to the dentist, one to a paediatric physiotherapist, one to my psychologist, recalcitrance and poor behaviour from me and my children, it also included a near fatal accident.

I nearly killed a young man at the beginning of this week.

And I did not want to write about it. The shame and incomprehension of this close call burn me in waves. But this incident bore a loud message, which I did want to write about.

On the first day back of school after months of lock down, I hadn’t planned to drive my children to their schools. We are walking distance from both. But time does strange things on school mornings. It slithers away at warped speed and suddenly, the window to comfortably walk to school on time slams shut. So, I drove them, on the proviso that this was going to be an exception.

Driving conditions during isolation have been muted. The amount of traffic diminished to that of a tiny country town in the middle of the night. School traffic ceased. Work commuter numbers slashed.

On that first day back at school, cars converged on the local streets and clustered around the schools like flies on a carcass. Drivers were filled with more emotion than a regular school drop off warrants. Joy. Fear. Dread.

My feelings? Happiness over the end to at home learning mixed with mild irritation at not having managed to get both kids out the door on foot on time. And once I’d dropped them, an urgent need to get back home and away from the chaotic traffic.

Impatience bloomed. I decided to make a right turn from a side street onto the main road across two lanes of traffic, to get me home more quickly than a series of left turns would have. The car in front of me went during a break in traffic in the first lane and was let in by a driver in the second lane.

I could see the same driver in the second lane holding a space for me to cross. So, I went.

I don’t remember if I glanced to my right to check the first lane was still clear. But the moment I slammed on my brakes and a young man on a red motorcycle had to swerve to avoid me, is burnt into the pit of my stomach.

I am a careful driver. In over 25 years on the road I have never had a serious accident. I have never driven drunk or while under the influence of prescription medication or non prescription drugs. I don’t text and drive. I was not sleep deprived or sick that morning.

So why this serious error in judgement?

Distraction, yes.

But there was more to it. While we have been in isolation, our worlds shrunk to our homes and occasional short car trips on empty roads, it has almost been like a lengthy period of hospitalisation.

I know from all the times I have discharged from hospital after weeks inside that just because I am out of hospital, my life doesn’t just snap back into place. I have to put the pieces of it carefully back together.

Re-entry into the world after isolation is the same. Our reflexes are slower. We are more vulnerable to chaos.

I am not nostalgic for isolation time. I don’t want to regress into the woolliness of those early iso days, drifting down deserted streets, staring perplexed at empty toilet paper shelves surrounded by people with harried expressions behaving as though the world was ending.

I will be very happy to never again step into the uncomfortable ill-fitting role of someone attempting to assist with my children’s at home learning.

But the jolt of re-entry has been a wake up call. A wake up call that I need to take the time to consciously reintegrate after this most bizarre episode of ‘home hospitalisation’.  My brain and body need some adjustment time. My children’s brains and bodies need some adjustment time.

Perhaps the most poignant aspect of my near miss accident happened immediately afterwards. The young man on the motorbike pulled over and came up to my car. I wound down the window ready for, and feeling deserving of, his abuse and anger.

He didn’t abuse me or even swear.

He asked: ‘Did you not see me, because that was really close?’

All I could say was: ‘No, and I am so, so sorry. I am so sorry.’

I will never forget the young man’s face, his emotional intelligence and compassion in an adrenalin soaked moment. And I will never forget his parting words:

‘Be careful out there.’

We need to collectively ‘be careful out there’ as we re-integrate after isolation or we will misjudge situations and possibly make fatal errors.

Postscript:

The other lesson learnt the hard way by another member of the family this week (and one I doubt has anything to do with reintegration) was not to open a tube of superglue with your teeth.

 

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