Deciding To Hope

To hope or not to hope?

In one week my immediate family and I are leaving for a holiday on Heron Island. That was a difficult sentence to commit to. Not the sentence, just one word.

‘Are’

The certainty inherent in those three letters. Articulating it feels like I am going to jinx it, like I will alter the course of history, even though I know that’s impossible.

This is our third attempt at this holiday. The first was over Easter 2021. I almost needn’t follow that up with any explanation. To use a recently much reworked cliché -everyone was in the same boat…or in our case not in the boat bound for our holiday destination.

It was a time of global holiday cancellations. We were all still invigorated by the adrenaline of the early days of a pandemic many believed could be conquered and left behind.

We rebooked our holiday for Easter this year. But in a twist of acutely painful timing our city was locked down. Ironically only for 3 days. But they were the exact 3 days we were meant to travel to Heron Island.

By the time that little lockdown ended, everyone else was off to enjoy their Easter camping trips. We were left feeling slapped, as though we had been singled out by the universe to miss out on our holiday.

But we rebooked again. For next week. Knowing it might not eventuate this time either.

And about three weeks ago doom crept into the family. We began to censor ourselves and each other. Snapping ‘If it happens!’ if anyone dared mention anything to do with the holiday. We shot each other down with sarcasm and repressed feelings as though expressing any plans, hope or joy associated with this holiday would save us the disappointment if it had to be cancelled again.

So, just under three weeks ago our family decided – that instead of clenching everything, and white knuckling it through this will-we-wont-we time, we would allow ourselves to feel the joyful anticipation of this holiday.

We began to talk about what snacks we’d take on the car trip. What we were looking forward to most. We wondered if we would see clown fish. We started making packing lists.

Don’t misunderstand me. This is not about mindlessly Pollyanna-ing the reality we live in. All four of us are abundantly aware that things can look like they are going ahead one day only to have them snatched away in a minute.

While it is true that right now we have no control over whether our holidays or special events will be cancelled at the last minute – it is also true that we never did, we just weren’t as acutely aware of it.

But we can choose how we feel in the lead up to planned events. We can choose to anticipate disappointment or anticipate joy. Whether it ends up being disappointment or joy is almost irrelevant because it isn’t about the eventual outcome. It is about how we feel right now.

We can choose to scrunch ourselves into a ball of anxious negativity. But for what? Being able to say ‘See I told you it would be cancelled’ if it is cancelled? Like a sort of sick Schadenfreude directed at ourselves.

Or we can choose a more relaxed, positive attitude that coexists with the knowledge that it may be cancelled, but that the anticipation is pleasant. If the holiday goes ahead we will have had a much nicer lead up to it, than having to spend the first few days unclenching from the negativity.

If it doesn’t happen, we’ll be disappointed, but we won’t have wrecked the preceding few weeks with dread.

Choosing to have low expectations in an attempt to avoid disappointment is not only flawed, but in these times of immense uncertainty it doesn’t serve us well. It robs us of joy. The brave thing to do is hope in the face of uncertainty regardless of whether that hope ever grows into reality.

That said, I have two disclaimers for the hope approach.

The first is that the ability to conjure hope relies on reasonable mental health. Someone experiencing symptoms of mental illness, especially those featuring depression or anxiety will no more be able to think themselves into hope than a diabetic can think their blood glucose levels into the correct range. They will need the right treatment for them before hope can become a choice again.

The second is that if you are attempting this with children, they need to be old enough/emotionally mature enough to understand that the hope does not guarantee the holiday.

For today, everyone in my family is well enough to hope that by mid next week we will get to see those clown fish and soak in the endless blues of the sky and the ocean surrounding our tiny Island destination.

You may also like to check out:

On Uncertainty

Covid Year 2: Timing Your Perspective

Razor Blades In Mud: Laziness Or Depression?

Covid Year 2: Timing Your Perspective

Welcome to year 2.

The frantic newness of the pandemic has worn off, although the announcement of a lockdown still triggers an anxiety that (for some people) expresses itself in toilet paper hunger.

As we move into the second year of life with Covid I feel as though I am part of sick game of involuntary musical statues. During intervals of relative local stability we all dance to the music of few restrictions. But there is a sinister undertone – our movement can be stilled instantly when the Covid puppet master stops that music and we are all turned to stone for a while.

When Covid cancelled our family trip to Heron Island this time last year it was disappointing, but I countered it with perspective, a stiff upper lip. After all what was a lost holiday in the big scheme of things? So many people were worse off.

So, we rebooked the Heron Island trip for this year. We’d been due to leave on March 30. The anticipation of it had built joyously for the whole family. I was particularly looking forward to it. Our last family holiday in December was marred by the onset of a bipolar episode the day after we arrived that saw me unable to enjoy it and heralded more hospital time. 2020 Ends In Hospital

I am stable now.

Over the weekend two of us dutifully took Covid tests for minor sniffles, both of which returned negative with plenty of time to spare before our scheduled departure.

When I woke up on Monday morning, the day before we were due to leave, I actually thought we would make it. And then news of the 3 day Brisbane lockdown broke, and my joy turned to misery. Our household was plunged into mourning. There were tears, cries of shock, and lead filled stomachs as we processed this loss for a second year in a row.

Is my wording a bit dramatic?

Are you itching to respond with the catch cry of this first world country, the mantra of our year?

 ‘It’s ok because others have it worse than you.’

Does that make it ok?

Should this fact completely invalidate our experience or feelings? Does our disappointment, grief and anger have anything to do with someone else’s (potentially worse) experience?

No. It is totally unrelated.

 And often swallowing our feelings through gritted teeth can be unhealthier than just vomiting them out and moving on.

I first encountered the results of suppressing my emotions because ‘others had it worse’ the night before my daughter’s first birthday, thirteen years ago.

The condensed version of the time surrounding her birth (if you haven’t already read about it in some of my other posts) is this: A 32 hour labour on 2 hours sleep, developing postnatal psychosis 7 days later, a month later catatonic depression, months in a psychiatric hospital, electroconvulsive therapy and much medication, and finally home by the time my baby was 4 months old.

As I recovered, I practiced a lot of gratitude for my healthy baby, which in itself is not a problem, but I had not allowed myself to process my feelings about that time before I plunged into gratitude.

The night before her first birthday I was out to dinner with friends. I could not stop thinking about what had been about to happen to me the year before. On the way home I pulled into the maternity hospital car park and lost it.

I wailed, tears and snot streaming down my face. It was ugly. But I finally owned my grief, and silenced the pernicious little voice in my head that had been telling me that I had no right to my feelings because I had a healthy baby and  ‘others had it so much worse’.

It was only once I’d allowed myself to feel my feelings that I could move on baggage free and feel genuine empathy for those who, in the big scheme of things, had experienced worse.

I am not naturally inclined to drama. I am all for perspective. At times I have been quick to paper over my children’s strong emotions with perspective, not because it is helpful to them in the moment, but because it lessens my discomfort at their distress.

Perspective serves an important purpose. If it is timed right. Once the initial urgent feelings have been dealt with and released, perspective can help us move on with our compassion for others intact. But forcing it too soon can trap us in resentment and on the exhausting hamster wheel of pretending we’re ok, when we’re not.

 Perspective (however well intentioned) would have been an unwelcome guest in our house just after the news of the holiday cancellation broke. However, 2 days later it had just started to soothe me with the knowledge that it could indeed have been much worse.

Proof that this could have been much worse came just now. The Brisbane lockdown ends at noon today. Covid has pressed play again. Brisbane people get to dance into their Easter holidays.

For me? Right now? Perspective has again momentarily retreated.

Excuse me while I go away and vomit up my feelings about the military precision with which our holiday was assassinated. We were turned to stone over the exact two days when we needed to be dancing.

I will welcome perspective back once I have emptied myself of this minor resentment and am keeping everything crossed, that maybe the music won’t be stopped on our third rebooking in September.

You may also like to check out:

Making Sense Of It (introduces the concept of a ‘tantrum allowance’)

Covid Lockdown In A Psychiatric Hospital

When Covid-19 And Bipolar Recovery Collide With Unexpected Results

Covid Lockdown In A Psychiatric Hospital

I recently encountered Covid  restrictions and a lockdown as an inpatient in a psychiatric hospital. And while the specifics are relevant, my experience was more complex than donning a mask and staying inside. But let’s start with the specifics.

There is the loss of the hospital dining room and its well-stocked salad bar. This normally bright spacious room filled with chatter and choice has closed, gone into mourning. The ability to choose your own food and sit where you liked – a small token of independence – replaced by a tray delivered to your room at 7am, 12 pm, and 5pm with a sharp rap at the door. You get little choice and a small window to eat before the kitchen staff are back to collect your tray.

There is not being able to leave the hospital grounds until discharge. No opportunity to test where you are at with a short visit home. Another small freedom lost, and you become totally reliant on visitors to bring you anything you might need from the outside world. Until restrictions turn to lockdown and the visitors are banned from visiting.

All staff start wearing masks, and the buzz of their anxiety fills the hallways like a swarm of bees. Within a few days patients are told to wear masks anytime they are outside their rooms.

For anyone who has lived on this planet for the last year, none of these restrictions or lockdown conditions will sound unusual. Everyone has lived some version of them.

But my experience of them as a psychiatric hospital inpatient was different to my experience of them when I’ve been well and at home.

Here’s why:

Even with access to an excellent private psychiatric hospital, being an inpatient strips me of autonomy and leaves me feeling as vulnerable as a slug on a busy highway.

The admission process alone – which includes providing a urine sample for drug testing and the thorough inspection of your bags (for any means of self-harm or suicide) by two gloved nurses – is a humiliating experience.

 It screams: ‘You cannot be trusted’ and whispers sharply: ‘We are in charge of you now.’

It’s made worse if the nurses attempt light conversation about the contents of my bag.

‘‘That looks like a good book…’

I don’t have the energy for it, and it makes me feel like a toddler they are trying to distract from something unpleasant.

As a patient in a psychiatric hospital I frequently lose the right to my feelings. For example:

One of my admitting symptoms (usually prodromal to mania) can be intense pathological irritability. It is completely different to feeling irritable in a normal context. And it is not the same as the irritability I feel when I am forced to interact with one of the nurses whose attitude grates on me even when I’m well.

 I try to be polite, but when my tone slides into curt, she cocks her head and says:

‘Your irritability levels are quite high today.’ before self-importantly noting this down as a symptom for the day. And I am powerless, because if I protest that would just be further proof of my mental illness to her.

And then there are the cringeworthy names I am called, mostly by nurses and kitchen staff:

‘Dear, Darling, Love.’

 I am ‘Darling’ to only my mother. ‘Love’ never fails to sound derogatory to me. As for ‘Dear’ – one of my worst and earliest hospital experiences involved being called ‘Dear’:

Fourteen and a half years ago when I was less than a week into my first episode of mental illness, I experienced a severe psychotic episode. I was led into the Special Care Unit (the highest security locked ward) of the psychiatric hospital by two nurses, one gripping each elbow.  On the way there, one of these nurses said:

‘Don’t worry Dear. You won’t remember any of this in the morning.’

The next morning I was so sedated by the (necessary) medication I‘d been given, I may not have looked as though I had any memory of the horrors of psychosis. But I remembered all of it. The proof is in the account of that night in my memoir being published this year.

If I knew where to find the nurse who called me ‘Dear’ (on that occasion), I would give her a copy to show her just how much a patient experiencing florid psychosis can remember.

There are many other factors that contribute to my sense of infantilisation in hospital. But elaborating on them would take me well over my word limit. So I’ll leave it here, for now.

Thankfully this recent admission was short (two and a half weeks) but the combination of the inherent lack of autonomy in being a psychiatric inpatient and the above mentioned  Covid factors hugely amplified my vulnerability.

And I have never felt so powerless.

You may also like to check out:

2020 Ends In Hospital

Visiting Someone In A Psychiatric Hospital?

On Uncertainty

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