Mental Illness And Humour

I don’t joke about mental illness.

And when anyone around me does, even if it’s about their own experience, I feel as though I am trapped in a cube of thick glass, a scream frozen in my mouth.

I’ve wanted to write about why I feel this way for a long time but have discarded the topic again and again. I know many people use humour to help them live with their mental illness. But I’ll come back to that.

Onto my reasons for not being able to take these jokes.

At its simplest, I don’t believe we have eradicated sufficient stigma to safely joke about what living with a mental illness means.

It might look like we are making progress, but it’s an illusion.

Sure, our baby steps skim the surface of the most palatable mental illnesses. Anxiety that resolves with mindfulness, or depression that is sorted with some exercise and early morning sun exposure.

The ‘brave’ disclosure of taking (a respectably small amount of) medication for anxiety or depression, has shed a lot of stigma in recent years.

But dive below the surface and things get uncomfortable for many. Think psychosis, psychiatric hospital admissions, Electroconvulsive Therapy etc.). The world still largely deals with this discomfort as though it is a teenager trapped in a car with a parent talking sex education. Sulky silence, avoiding eye contact, and wisecracks.

Then there is the constant energy sap of explaining.

Let’s take some experiences I’ve had recently.

First came the media requests for my opinion on whether Kanye West’s antisemitic hate speech, racism, and misogyny were caused by his bipolar disorder. You can find my responses here:

https://www.mamamia.com.au/mental-illness-can-happen-to-anyone/

https://www.mamamia.com.au/podcasts/the-quicky/kanye-bipolar

https://www.sbs.com.au/news/the-feed/article/kanye-west-is-in-the-news-for-the-wrong-reasons-how-do-we-include-his-bipolar-disorder-in-the-conversation/fuocnelxj

Suffice to say I wasn’t laughing as I wrote and spoke.

Next it was a question at the end of the Q and A for one of my library author talks about my memoir, Abductions From My Beautiful Life.

‘Hi, I’ve read your book. I noticed there is no violence in it. Is that true?’

I asked, ‘What do you mean?’

‘It’s just that whenever you read about people with mental illness, they are always violent. So, I was surprised not to find this in your book.’

An ache swamped my chest. Everyone in the room waited for my answer to this jagged question.

I explained that the media often stigmatises mental illness by reporting violent outcomes devoid of context or humanity. I explained that, yes violence occurs, but the mentally ill are more likely to be victims not perpetrators. I explained that when someone’s violence is rooted in their mental illness it is too often not a case of them slipping through the cracks. It’s a case of there being more cracks than solid ground.

And that no I have not edited any violence from my book. Aside from the violence psychosis visited on my brain, there wasn’t any.

I was thanked for my explanation.

But it shouldn’t take me or anyone else to explain that most people who live with severe mental illness are not violent, antisemitic, misogynistic, racists.

While I am well, I choose to explain it again and again and again, because silence leaves a space for the public to draw their own conclusions when Kanye behaves badly, or poor journalism demonises the vulnerable. But the constant explaining leaves me with no energy to laugh about any of it.

When I can, I push back against memes and social media posts that joke about my worst nightmares, or even just sprinkle stigmatising language around like poison disguised as fairy dust. ‘Psycho’ ‘nuthouse’ ‘mental’…

When I point out these ‘errors’ in the comments sections I am often told I can’t take a joke’. I’m told to ‘get a life’ ‘lighten up’, ‘fuck off’, or that ‘it’s just a meme’.

And when I am not well enough to push back and explain, the world continues to fill in the blanks, and papers over its discomfort with another meme.

So, does anyone get to joke about mental illness?

In my opinion:

If humour surrounding mental illness is part of a private conversation between people with lived experience who share enough history to gauge what is appropriate, I have no problem with it.

If you live with a mental illness and find being humorous about your experience is helpful to your recovery and maintaining stability, go ahead…

But have the grace to acknowledge you don’t represent everyone. Consider whether your jokes hide self-stigma. And if you choose to share your humour publicly, ask yourself if the benefits to you outweigh the risk of potentially generating more stigma.

Also – if you share jokes or memes online that perpetuate negative stereotypes around mental illness – don’t tell me to ‘lighten up’ when I call them out.

Lastly – If you have no lived experience of mental illness, don’t joke about it.

As long as the status quo assumes that the perpetration of violence and mental illness go hand in hand, we are still lightyears away from a point when everyone can laugh safely.

You may also like to check out:

Mind Your Language Katy Perry

Tokenism In Mental Health Awareness

Work Leave For Mental Illness If You Are Not Naomi Osaka

Naomi Osaka’s decision to step back from her job for reasons of mental ill health has stirred up a lot of debate in the last week. And yes, it’s great that she is being open about her mental ill health being the reason for this decision.

But Naomi Osaka is not representative of most people who experience mental ill health during their working life. The main reason is that (financially) Naomi can afford to take enough time off to recover.

I don’t point this out to minimise her suffering. Mental illness doesn’t discriminate. It will make you feel equally shit whether you are wealthy or not. But the luxury of time off for an employee to recover fully from an episode of mental illness is not one many workplaces will or even can accommodate.

This week several experts have stated that it is illegal for employers to discriminate against employees living with a mental illness, that these employees have a right to time off and to have their work modified to accommodate that mental illness.

I have mixed feelings about this. I feel exasperated, bemused, and tired. Because these earnest, well intentioned experts have no idea how mental illness and work mix in the real world.

The first time I experienced mental illness (postnatal psychosis followed by rebound depression) I was hospitalised for close to four months. ‘Luckily’ for my employer I was on maternity leave, so absolutely no thought had to be put into managing my absence, because it had already been planned for.

After I recovered, I continued to work as a small animal vet for another 12 years before taking a break to have my book published. In those 12 years I experienced a severe Bipolar 1 episode on average every 2-3 years. When I say severe, I mean requiring hospitalisation for weeks or months on end followed by a gradual re-integration to life outside the hospital.

Here are the two deal breakers my illness presents to most work places:

Firstly, for me, the onset of episodes of illness is sudden – ie between 24-48 hours. There is no time to plan or find someone to fill in.

Secondly, when I’ve had to phone work to say I would not be in for my next shift, I’d have to follow that with ‘I have no idea how long I will need off’.

Again – luckily for my employers – in those 12 years I was a casual employee. This meant I was effectively fired each time I got sick.

The practice I worked for was not doing anything illegal, and from a practical and financial point of view they could not have indefinitely held a position open for me. Each time I eventually recovered, and because there is almost never a shortage of work for vets – new hours were found for me. But me being able to slot back into the same workplace each time was due to the nature of the industry, not due to any laws to protect my position and income.

I am privileged, and thankfully my husband could support our family without my wage when I got sick. But my survival and roof over my head have had absolutely nothing to do with my workplaces being able to accommodate my mental illness.

Just because it isn’t legal to fire people or make their life hell because they live with mental illness doesn’t mean it isn’t happening. I know plenty of people who live with this reality.

This injustice occurs because of a gargantuan power imbalance between an employee who lives with a mental illness and their employer. Whether employers are aware of it or not: They hold all the power. Here’s why:

Stigma still prevents many people from disclosing they live with a mental illness to their employer – especially when they are asymptomatic. Once that person becomes symptomatic, they are likely to struggle just to get through each day or hour. Symptoms such as poor concentration and memory, distorted thinking, irritability, a sense of hopelessness, panic attacks, and non-existent self-esteem, (to list just a few) make it incredibly difficult if not impossible to not only schedule a meeting with their boss or with HR, but then present at that meeting as a fully functioning human being.

And if they do, and their boss discriminates against them they often don’t have the mental resilience and the finances for a legal battle to bring their discriminating employer to justice.  

These employees will often just go quietly –because that is all they have the energy for. Then their employer gets to shrug their shoulders and say: ‘Well it was the employee’s choice to leave!’

I am grateful to Naomi Osaka for cracking open the conversation about mental ill health at work a little wider. If it causes even one employer to stop and consider that the playing field between them and an employee who lives with mental illness isn’t even, it will be a good thing.

But there is still a long way to go before people who disclose their mental illness at work can expect to be treated the same as anyone who discloses a physical illness.

To read a bit more about my work life, you might like to check out my recently published memoir: Book and how it came to life: Welcome To The World ‘Abductions’

Welcome To The World ‘Abductions’

Elation

For the last 14 years this emotion and I have had a complicated relationship. Before that, I experienced its giddy joy like anyone else.

It greeted me on the first days of longed-for holidays.

I experienced it on planes during take-off. In that moment of palpable lift, when the wheels left the ground and I shed gravity for a while.

It swooped through my body when I’d meet my childhood best friend, Sandra, at airports and train stations in different countries after years of separation.

Many moments of elation were tied to achievement. School grades, University degrees, getting jobs, have all elicited it. A psychologist would grimace at that, but there you have it.

But when I was nearly 33 something happened that warped elation for me.

I gave birth to my first baby.

The birth of a baby is usually viewed as the ultimate source of elation. Much is made of the overjoy of brand-new mothers.

But I was brewing something sinister when I went into my 33 hour labour on 2 hours sleep. That sleep deprivation, and the massive shift in hormones after the birth became the key that fitted the genetic lock for my dormant Bipolar 1 Disorder. It introduced itself violently, as an episode of postnatal psychosis when my baby was seven days old.

Three and a half years later I did get a day of pure elation after the carefully managed birth of my second baby. But I took none of it for granted, as though I had an inkling the psychosis would be back at the six week mark.

Psychosis in Bipolar Disorder is often preceded by mania. For some people mania is preceded by hypomania, which is like an artificial sweetener to the sugar of real elation. Same same, but different.

I do experience hypomania, but it is transient. Blink and you’ll miss it before it progresses to the high speed car chase of mania. I don’t spend weeks feeling fantastic about everything.  But I’ve lived through enough hypomania to make me wary of true elation.

I force my elation through an airport security like checkpoint before I allow myself to feel it, because I know it could be the hypomanic second that precedes a manic episode.

So when elation wings its way into my heart, I put it through my metal detector of questions: How are you sleeping? Any racing thoughts? How’s your memory and concentration? Any sense of urgency, a pressure in the part of your brain right behind your eyes?

But right now I am truly elated.

Even my psychiatrist agreed I am entitled to it, after I handed him my third baby a couple of days ago.

My third baby is of the paper variety. Its newborn smell is that of fresh new books.  Its gestation period has been longer than a human’s, longer than an elephant’s. 14 years from first words to published.

This baby’s name is ‘Abductions From My Beautiful Life’, nicknamed ‘Abductions’, and it is my memoir.

You will find my DNA all through it. My many selves. The child, teenager, university student, veterinarian, mother, psychiatric inpatient and outpatient, writer, mental health advocate, partner, and friend.

I wrote this book because there are not enough first-person accounts of severe mental illness, especially those featuring psychosis. I wanted to dissolve some of the misconceptions about people who live with severe mental illness, and the stigma that accompanies them.

The road to get this book published has been long, rough, expensive, paved with barely-existent patience, blood, sweat, many tears, diplomacy, and a lot of rejection.

It seems– books that deal frankly with mental illness (other than depression and anxiety) are too prickly for many publishers to touch – or to quote the feedback my agent and I got time and time again:

‘It is beautifully written, and an important story, but it is not commercial enough’ ie it will not make us any money, so we won’t go near it.

After several years of rejections, I did finally find a way to have it published, via a contributory contract with a publishing house in London that I supplemented with my own freelance cover designer and freelance copyeditor, to ensure it was published to a professional standard.

To the countless Australian publishers who passed on this book because ‘although beautifully written, it was not commercial enough’ – I say:

This book was never intended to be the next Harry Potter, or 50 Shades of Grey. But having finally published it I am elated because I have given the people who might be interested, the opportunity to read this allegedly ‘well written important story’.

An opportunity they may never have had if I had given up on it. So if you are one of those interested readers, you now get to decide whether or not you like it, rather than having an anonymous wall of publishers tell you what you should or shouldn’t be reading.

All reviews, feedback, and comments are welcome. For now you can leave them in the Comments section of this post, or email me at anitalink73@gmail.com

And if you do enjoy Abductions or find it meaningful and you can think of someone else it might resonate with, recommend it to them or maybe even gift them a copy.

Publication, purchasing, and launching information:

Abductions From My Beautiful Life will be published on Friday 30.4.2021

You can preorder it now and continue to order it once it is published from:

Amazon Australia – click the link BELOW the image

https://www.amazon.com.au/Abductions-Beautiful-Life-Anita-Link/dp/152898319X/ref=sr_1_1?dchild=1&keywords=anita+link&qid=1619352950&sr=8-1

Fishpond Australia

https://www.fishpond.com.au/Books/Abductions-From-My-Beautiful-Life-Anita-Link/9781528983198

Booktopia Australia

Booktopia https://www.booktopia.com.au/abductions-from-my-beautiful-life-anita-link/book/9781528983198.html

If ordering from the UK:

Fishpond UK

https://www.fishpond.co.uk/Books/Abductions-From-My-Beautiful-Life-Anita-Link/9781528983198

Austin Macauley

https://www.austinmacauley.com/book/abductions-my-beautiful-life

Waterstones

https://www.waterstones.com/book/abductions-from-my-beautiful-life/anita-link/9781528983198

If ordering from the US

Amazon US – click the link BELOW the image

https://www.amazon.com/Abductions-Beautiful-Life-Anita-Link-ebook/dp/B091N7BSZP/ref=sr_1_1?dchild=1&keywords=abductions+from+my+beautiful+life&qid=1619353373&sr=8-1

Barnes and Noble

https://www.barnesandnoble.com/w/abductions-from-my-beautiful-life-anita-link/1139205441?ean=9781528983198

Launches:

To begin with I am planning several smaller private launches over the next few weeks and months rather than one big one. They will probably take place at my house to work as flexibly as possible with ever changing Covid restrictions. But the format will be similar to a traditional launch with drinks, discussion of the book, maybe a reading, and books for sale and for signing, or if you’ve pre-bought your book you can bring it along to be signed.

 If you live in or are passing through Brisbane and would be interested in coming along to one of these smaller launches, please email (anitalink73@gmailcom) or Instagram DM me @anitalinkthoughtfood so that I am aware of your interest when I send out invitations.

I will post further information about launches as they evolve.

For more on how ‘Abductions’ came into being you might like to check out:

Accepted: Crumbs To Canary Wharf

And you can find a brief excerpt here: Book

Accepted: Crumbs To Canary Wharf

20190419_210616

It started on the paper bag that the breakfast toast came in. First, I shook out the crumbs to give me an even writing surface. I had no other paper. I was inside the SCU (Special Care Unit), in a psychiatric hospital in August 2006, emerging from my first psychotic episode. And as the medication slowed my boiling brain, a miniscule part of me, took in my environment and thought:

‘I am one step away from a padded cell. Unbelievable. But while I am here, I will record as much as I can, because not many people experience this.’

So, I made my words tiny to fit as much detail as I could onto the toast bag.

Over a year later I wrote an account of my psychotic episode based on that bag and some diary entries. My supervisor for my Master of Arts in Writing Editing and Publishing read it.

‘This is really good writing. You should consider expanding it into a memoir.’

Continue reading “Accepted: Crumbs To Canary Wharf”

Search Warrants

InkedAdmission details_LI.jpgWhat would you pack for a stay in a psychiatric hospital?

Think first about what you will need in the first half hour after you arrive. You don’t actually pack these, but if it’s your first time they’re worth knowing about.

Here’s what I aim to bring to get me through the admission process:

My dignity and a fullish bladder.

Continue reading “Search Warrants”

Lies Of Omission: What You’re Never Told

Psycho Killer Shatters Young Family!’

Thoughts?

I had an interview with a PhD student from Melbourne Uni last week. It was for a study into what can be done to improve media reporting around severe mental illness (SMI) to reduce stigma. The media is largely responsible for the way people like me are perceived by the general public. So, I was delighted to contribute to this study.

Our trusted news sources are slickly practiced at generating gory headlines that draw eyeballs to them like magnets. If SMI is thought to contribute to a crime, it is either ignored or thrown into the story as a cold, hard after thought. Something that can’t be changed and is barely acknowledged as an illness.

The main characters in these horrific accounts may have an undiagnosed, poorly managed, or unmanaged SMI, but the journalist in the by-line doesn’t dig deep enough to expose the reasons for this:

Society does not care about or for us in the same way they do for others with serious, chronic, intermittent potentially fatal illnesses.

Continue reading “Lies Of Omission: What You’re Never Told”

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