Reset

The virtual shouting stops on the boat. My compulsion to check the noise evaporates with the loss of signal, the lack of Wi-Fi.  Once the grey green water of the harbour becomes ocean, the colour of a newborn’s eyes. A colour that holds the answers to everything.

When we arrive two hours later the blue changes again. Transparent and vibrant like blue heaven jelly. A giant bowl of it. Viewed from above the sharks and turtles and rays could be gummi lollies, if they weren’t moving. If they hadn’t been moving through these waters for thousands of years. Long before we came with all the awkward gear that allows us to breathe under water.

One of the first days. On the five-minute boat trip to the outer reef. We squint. It looks like a flipper, just piercing the glassy water in the distance. A dolphin? We draw closer. Engine cut. And there – barely below the surface, four metres of magnificence, mouth parts welcoming plankton. Silver, grey, black, and white – a giant silk handkerchief shimmering in the sun, billowing on the tide. A manta ray, gracing us with a moment of awe.

On another day it is dolphins, close enough to see their skin shining in the sunlight with each arc above the water.

Snorkelling off the beach. Impossibly sleek reef sharks glide close. Black and white tipped. Small eyed. Large nosed. Clown fish dart in and out of their protective anemones. Symbiosis. Ears submerged I hear parrot fish crunching coral. Their jewel tones on steroids and perfect fin flaps almost make even me believe in a god.

I hover clumsily next to unperturbed turtles. They breakfast while my breath moves noisily through my snorkel.  Blank black eyes focussed on each mouthful of sea grass or coral. The patterns on their heads and shells are intricate as fingerprints. Neck skin concertinaed in wrinkles. And when one glides off unhurried, I flap along beside her, eager to witness her surface for breath.

Each evening the birds return to the island. Hundreds and hundreds fly in on the sunset as it paints a golden red carpet on the water. I could walk into forever on it. In thirty seconds, a minute at most, as a reminder that the earth still turns, the last of the sun slips into the sea like a burning coin.

In between snorkels I read. Paper and ink books. Several.

For a week, whenever I close my eyes, fish, coral, sea stars, sea cucumbers, velvety clam lips, swirling fish, play on the inside of my eyelids. I didn’t take a camera into the water with me this time. Too distracting. I take my eyelid footage with me instead.

The release from screen suction untethers me from the endless frenetic opinions and largely meaningless activity social media hurls into my brain. This passively acquired ‘content’ vacuums up my time and energy and adds nothing to my life.

I arrive home. Feelings mixed. I could have stayed and stayed. I am also relieved. The tension of possibly forgetting either or both of the two separately packed sets of medication I travel with releases. The fear of my Bipolar disorder wrecking our holiday evaporates. Because it didn’t happen. This time. It doesn’t have a good track record for respecting holidays.

I love being removed from the rest of the world. But there is a flip side. Travelling somewhere remote with no access to doctors, pharmacists and no means of contacting them, means I travel with an undercurrent of fear. The potential of having especially a psychotic episode when cut off from all of the support I need to treat it, fills me with horror.

My re-entry into signal, Wi-Fi, and responsibilities is an opportunity for a reset. Pruning and muting the unnecessary followings. Being a bit more mindful about the world my phone dumps into my head when I pick it up. Reading paper and ink books at bedtime…

And when things get hectic again – because they will – I will dip into one of my favourite pieces of footage from the time away:

On the last day. In the water. Just off the edge of the reef. Magic appears with the majestic passage of three mantas below us. Close enough for sunlight to make them shine and glisten with each leisurely flap of their wings. Impossible for anything else to exist in this bubble of time. They gradually dissolve into the deep and leave behind joy, a lifelong memory, and an elated expression on my daughter’s face.

When Covid-19 And Bipolar Recovery Collide With Unexpected Results

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I have spent the last five weeks in a psychiatric hospital for management of a Bipolar 1 Disorder episode.

I am no longer sick. But still fragile. Like an egg without its shell. I always reach a point on the return to wellness where I can get no better in the controlled bubble world of the hospital. A point where staying longer is of no benefit and can even become detrimental.

I ventured back out into the world at the end of last week. A world that hasn’t grown any softer in my absence. It is the same hustling harsh, bruising, breaking place it always has been, but perhaps more so. No one was fighting over toilet paper five weeks ago.

That said, after any admission for a Bipolar episode, jumping back into my life can feel like steel wool on newborn skin in the early days.

No one can tell by looking at me when I leave the hospital that I need rehab and resilience building before I am ok again. For me, on average that takes the same amount of time I was hospitalised for. So, in this case – another five weeks.

People tend to be congratulatory about me being well enough to come home. I don’t want to be a downer. I am grateful to be home. But just because I’m out of hospital it doesn’t necessarily mean it’s over. It can look like it is slinking away not to be seen again for a couple of years. But appearances can be deceiving.

Once, this illness spent a whole year of my life bouncing me in and out of hospital so often, I got dizzy. By the end of that year, in which most months had held a hospital admission for me, it had nearly killed me. So, that’s why I don’t think about exhaling as soon as I am home.

Today is my fourth day at home. I am still acclimatising. But I also recognise something unexpectedly positive borne of the last five weeks.

Being in hospital with Bipolar symptoms has prepared me for the Covid-19 headlines very nicely.

I get a sense from these headlines and the empty toilet paper and pasta aisles in the supermarket that many people are panicking, or at least are very worried by the uncertainty they are being force fed right now.

I am still in the mindset it took to get through my last five weeks. I lived that time (and do every time I go into hospital) in two-day increments. Why? because it is pointless to look or plan any further ahead. Neither I nor my psychiatrist could fortune tell what would happen. Five weeks of observing, tweaking medication or not, and then waiting another two days before assessing again.

To be clear, there is a difference between not taking something seriously, and choosing to engage only in what is in front of you. I take my Bipolar Disorder seriously, especially when it flares. But does that mean it would be helpful to spend my entire admission panicking that this is the time I become a permanent inpatient (they exist)?

Or should I break it into chunks the size of a couple of days and hit repeat, until at some unknown time in the future I am out the other side?

I’ve spent early admissions, years ago, engaging in the first option but have learnt that the way through with the least energy wasted is the second one.

In the same way, I take the Covid-19 pandemic seriously. But you won’t find me panic buying or worrying about whether or when it will end. Breaking this issue down into two-day increments feels helpful to me right now. Every two days (or sooner if the headlines change dramatically) I reassess the basics: Do I and my immediate family have enough food, water, medication and accommodation for the next two days? I am fortunate. So, far the answer has been yes.

Is there any point in trying to predict what might happen next month or even next week, and worrying about it?

None!

Because no one knows where we will be then. You can only act on the information you have at the time.  And if right now your basic needs are met and you are well, don’t buy more and more and more food or toilet paper (unless you are doing it for the vulnerable members of our population).

Breaking the overwhelm of a difficult situation with no known endpoint into smaller portions lessens the strain on our mental health and preserves our energy for more productive tasks.

And if we do it often enough that’s what will get us to the other side of this situation too.

 

You may also be interested in:

What a mental illness can teach you about your mental health

Where’s Your Comfort Zone?

Interruption To Regular Programming

Update 27.2.2020

 

You Don’t Die Of ‘Mental Health’: Why Wording Matters

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Spot the error in the lay out

(CW: This post mentions suicide)

I just read an article that described one of singer Guy Sebastian’s friends as having:

‘lost his life to his battle with mental health’

Tragic. Another young man has become a statistic that should be at least partially preventable. Sadly, we can’t bring him back.

But there is something we can do to inch our way towards better describing why this happens. We can use accurate language when we write and talk about these tragedies.  Language that doesn’t mislead. On the surface it may not look like there’s much wrong with the above quote.

So, why do I feel exasperated about it?

Continue reading “You Don’t Die Of ‘Mental Health’: Why Wording Matters”

2018 – The Year I:

Thought about homelessness, after I witnessed displaced people with cardboard placards to explain their belongings smudging the busy and important streets of Sydney in the first days of the new year. My emotional barometer flicked between pity, sadness, relief, and settled on horror because this could still be me one day. The Right To A Home

Went to work. After twenty years the neural pathways for running a consultation competently and compassionately, for reading who I am in a room with, and being a shock absorber for their anxieties and concerns, are so well-worn they are almost automatic. Contrary to popular belief (and this photo), we spend much less time playing with puppies and kittens, than we do using our communication skills to explain, empathise, and advise our way to the best outcome for our patients via their owners.20170619_130857

Felt it come for me. In February, over two days. My sanity stepped into quicksand. Mania swallowed me. I called into work sick. I said goodbye to my family. I went into hospital. Battened down my hatches and prepared for the usual long stay. Only to be pleasantly surprised. Four weeks in hospital. That’s short for me.

Lost my job. I do every time I get sick.

Opened new neural pathways by setting up a website, which enabled me to write and publish this blog. My technological ineptitude is boundless, so the existence of Thought Food is a minor miracle.

Supported three men. All stepping through the sticky tar of depression at some point this year. All blindsided by the ferocious nature of this beast. All strong, kind, intelligent, undeserving.

Exercised most days. Ate green vegetable omelets for breakfast some days and Nutella on toast with mug loads of coffee on others. #NotFitspo

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Welcomed Clarence, our baby Stimsons python into the family. He is the lowest maintenance pet I have encountered. Gentle, inquisitive, and only needs to be fed every seven to ten days.

Continued to receive rejection after rejection of the manuscript for my memoir from publishers via one of the best literary agents in the country. Each one stings. Each one frustrates. According to publishers’ feedback the quality of the writing is great, but it’s not commercial enough. In other words: No one wants to read about psychosis if you haven’t killed someone in the throes of it or at the very least been picked up wandering the streets nude and ranting.

Began considering self-publishing the manuscript for my memoir.

Climbed back into some weekend work.

Heard my mother’s voice tell me my father had nearly died after a massive heart attack. Seeing him on day two after triple bypass surgery, comatose, tubes and wires snaking in and out of him, and the comforting blips and beeps and numbers flashing on familiar screens was easier than seeing him on day four, awake, in agony with each movement. He survived. My Father’s Heart Broke

Applied for, was accepted into, and completed the SANE Peer Ambassador training program. The glow of being in a room with others who went through hell, survived, and are now well enough to use that experience for good, still warms me. And I finally feel I’m not advocating on my own anymore. The Chosen Ones

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Gathered friends for dinners and lunches to enable my love of cooking, baking, great food and wine, and conversation…so much conversation.

 

 

 

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Became familiar with the inside of an ambulance courtesy of seven night time trips to hospital in ten days. My son developed partial seizures lasting up to ninety minutes each. Relief flooded me when his MRI scan was clear (of brain tumours) and he was diagnosed with benign rolandic epilepsy (infinitely more manageable). Lessons For A Control Freak

Clung to small wins amongst the manuscript rejections. Three posts published on Mamamia, one on SANE, and a submission for Dr Mark Cross’s book on anxiety accepted.

https://www.mamamia.com.au/mental-illness-language/

https://www.mamamia.com.au/symptoms-of-postnatal-psychosis/

https://www.mamamia.com.au/signs-of-depression/

Narrowly avoided a second hospital admission in October. I pounced on the onset of a depressive episode with an emergency psychiatrist appointment, a medication adjustment and slashed away all commitments except exercise for several weeks. Razor Blades In Mud: Laziness Or Depression?

Became a spokes person for the Australian Genetics of Bipolar Disorder Study, and suggested edits to make the language in the main study survey more consistent and less stigmatising. Most of my edits were approved and included less than twenty-four hours before the study launched. A clip of some of my participation and how to participate in the study can be found here:

https://www.geneticsofbipolar.org.au/hear-from-study-participants-alex-anita/

Attended my first ever non-veterinary conference: ‘Empowering online advocates’ and came away feeling much more hopeful than the trip to Sydney in January had left me. #HealtheVoicesAU

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Discovered the joy of camping, absolutely enabled and enhanced by beautiful friends who supplied (and set up) most of the gear.

Resigned from veterinary work. Ostensibly to stop straddling several worlds and free up more time and energy for writing, mental health advocacy, and my children. That is all true. But I am also bone crushingly tired of the cycle. Work, get sick, lose employment because the nature of my illness means I can’t give a date when I’ll be well enough to return, and I can be sick for months. Then I clamber my way back into a demanding profession you can only inhabit when you are functioning at 100% of your capability. I expend time, energy, and money to do enough CPD (continuing professional development) to keep my registration up to date…only to lose it all again the next time I get sick. The plan is two years off. Then see where I’m at.

Received a handwritten Christmas card and instant scratchie from my pharmacist… one of my six medications alone costs $30/week. Treatment

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Reminded you to end the year saying no when your gut tells you to, and being kind to yourself when you feel like doing the opposite.

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My 2018 World Mental Health Day

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How was your World Mental Health Day? Mine happened to be pretty shit.

It doesn’t really matter, because mental illness doesn’t respect particular days, especially those deemed meaningful by human beings. I’ve spent enough birthdays, Christmases, and anniversaries in hospital with a mental illness to lend weight to this theory.

Paying homage to mental health (ours or others) on a designated day seems like a nice idea on the surface, but I’m not convinced it does a lot. I suspect it makes people who don’t suffer a mental illness feel good if they remember it or mark it. But is this just another version of tokenism? Does it really make any difference to the lives of people living with mental illness every day of the year?

A very smart woman who ran the SANE Peer Ambassador training workshops I attended recently made the excellent point that we don’t have World Physical Health Day.

And that is because every single day is World Physical Health Day. It would be far better to reach a point in history where caring for ourselves and being sympathetic towards those around us with mental illness is as matter of fact as caring for our physical health. We shouldn’t need World Mental Health Day.

Here’s what today looked like for me:

10 am

‘You look flat’

There is only one person I trust to make this assessment, and it’s the one who spoke to me. My psychiatrist. He and I have known each other and worked together for just over twelve years now. And I have trusted him with my life many times.

For the last four days I have felt flat. It started with a sluggish Sunday. But everyone has those. Right? I am exhausted. That’s ok, understandable. It’s been a stressful couple of months. However, in the space of those few days ‘I’m exhausted’ morphed into: ‘I am exhausted by life.’

I have been on this runaway train often enough to know that feeling exhausted by life is the last stop before suicidal ideations set in. And that is where it turns into not ok. By yesterday, when I made the appointment with my psychiatrist, I was feeling worthless. Black thoughts crept in and crowded out the positive, the motivated, the real me.

Thankfully I have the insight to recognise these feelings and thoughts as imposters. These are symptoms of depression setting in. They have been waiting in the wings for their moment. My Bipolar Disorder is here to collect, on all the stress and sleep deprivation I had no say over in the last few months.

In the past I went to war against these thoughts and feelings. So naïve to think I could somehow out think or out feel them. Such a rookie error. As is waiting to see how it will all play out. That tends to land me in hospital for months at a time. So, after four sluggish days, feeling flat, off, down, irritable, and with my memory and concentration beginning to fray I walked into my psychiatrist’s consulting room this morning. That’s when he proclaimed, before asking me a single question, that I looked flat. And I felt relieved, because I knew I’d been right to come.

I listed my symptoms. He looked at my chart. Then, reminiscent of a pilot attempting to correct a plane out of a nose dive, he said:

‘Let’s increase the Lexapro by 10mg and halve your Lithium dose until your mood comes back up. As soon as your mood lifts, go straight back onto the full dose of Lithium. And keep your appointment for next Friday.’

‘Good. Let’s try that.’

Then we speak of the heavy truth between us:

‘And if I crash before then….’

‘Then you will call me and come into hospital.’

Neither of us want that. Neither of us want the months in hospital possibly having ECT, because I’ve become catatonic. Yet we both know it’s still a possibility.

So, in honour of World Mental Health Day 2018 – here are my thoughts on what will get me well again:

Insight. Communication. Early intervention with a medication adjustment. Fingers crossed. And luck…so much fucking luck…

Making Sense Of It

Treatment

What Does Someone With A Mental Illness Look Like?

Sick Not Selfish

Wedding Breakfast Spoiled

Lessons For A Control Freak

 

Muscle Memory

hanged pair of white leather figure skates

We went roller blading over the school holidays. It was my first time. We arrived to loud music, children shrieking, the clank of skates hitting each other, and the thump of bodies crashing into the barriers. Roaming skate instructors, gave snippets of advice to the inept among us:

‘Lean forward and put your hands on your knees. Don’t look at the ground.’

With each instruction the tension in my body ramped up.

Continue reading “Muscle Memory”

Wedding Breakfast Spoiled

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I had plans for this post to be much softer than the last. No politics or indignation…

I started with excellent intentions. I slept in, made banana pancakes for breakfast, a big plunger of coffee, got the paper, and planned to read about the royal wedding preparations, the politics of which I am not particularly invested in.

So, I opened The Weekend Australian. I never got to the royal wedding preparations on page three.

On the front page the following words tore at my eyeballs:

‘Killer grandfather had acute depression’

Continue reading “Wedding Breakfast Spoiled”

ECT: Blowing up some myths – Part 2

Mental illness
To find the story behind this photo read to the end of the post

Where were we? That’s right. We’d left me in a state of catatonic depression. If you haven’t read Part 1 of this post, which dropped yesterday, I suggest doing so now.

The first time I slid into catatonic depression, my psychiatrist tried anti-depressant after anti-depressant while I was hospitalised. Nothing worked.  I was still brand new to mental illness. Two months before, I’d suffered my first psychotic episode after the birth of my first child. My First Time

I had gone from mentally healthy for thirty-two years, to experiencing some of the worst psychiatric symptoms in existence. I felt as though I had entered a parallel universe. When ECT was recommended I had a sense of being at the end of the line. I didn’t know much about it.

Continue reading “ECT: Blowing up some myths – Part 2”

Treatment

Psychiatric medication, mental illness treatment

Kirsty Alley is right. Psychiatric medications cause aggression and suicide…

I probably would have added a ‘some’ in front of psychiatric medications and a ‘can’ in front of ‘cause’. And I draw the line at blaming all shooting homicides in the US on psychiatric medications, but it is true that some psychiatric medications cause psychiatric side effects. For a harrowing account of how psychiatric care can go horribly wrong one need only read Rebekah Beddoe’s memoir Dying For A Cure.

Psychiatric care done right is complex and unfortunately not always easy to access.

Continue reading “Treatment”

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